Fascinating article. I had never heard of the nocedo affect before, but after reading your article I realized I have lived it. This summer I learned I might develop scleroderma and almost immediately afterwards I started having some of the symptoms- but these later went away as lung tests and heart tests showed I don’t have any damage yet. Interesting ethical question about if it is better to share the side effects or leave patients in the dark as well.

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I am a teacher, with two kids, recently diagnosed with Lupus, and possibly other auto-immune conditions, living life to the fullest, while managing symptoms.

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